Dealing with a chronic or life-limiting illness can be extremely demanding, time consuming & emotionally and physically draining. Not only can it be taxing for a child that is sick, but also the entire family who’s caring for them. An option to help alleviate some of these stressors is pediatric palliative care. Some families are hesitant about seeking palliative care because they find themselves confused about what it entails and don’t know where to begin when it comes to additional professional care for their child. For the many families who are afraid of making a big decision about their child’s care and are struggling to find any kind of help for their child’s serious illness, pediatric palliative care may be a solution.
When To Consider Palliative Care
Palliative care is appropriate at any stage of diagnosis of a chronic or life-limiting illness. Some people choose to begin care right away, while others wait until things get more complicated. For many people palliative care is a way to give their child the luxury of staying at home rather than in a hospital. Often times palliative care patients are able to reduce emergency room visits and lessen the length of hospital stays.
How Does Palliative Care Work?
Pediatric palliative care is a form of specialized care for children living with serious illness. Palliative care strives to improve both your, and your child’s quality of life, provide them with supportive care, and foster a supportive environment. Your palliative care team will work with your child to manage their symptoms, offer emotional support and therapies, and teach you how to best cater to your child’s needs. Palliative care is built from a team of doctors, nurses, social workers, and other necessary staff who work together to provide the best care possible. The team seeks to provide compassionate and comprehensive care to provide your child.
Addressing Symptoms with Pediatric Palliative Care
Pediatric palliative care focuses on children dealing with serious medical conditions like genetic disorders, cancer, prematurity, neurological disorders, heart and lung conditions, etc. Your pediatric palliative care team will work to reduce your child’s symptoms so that they can be more comfortable and have a higher quality of life. Many symptoms that children with serious medical conditions suffer from include pain, shortness of breath, fatigue, nausea, difficulty sleeping, anxiety, and depression. Your specialized team will do everything they can to specifically address these symptoms.
Pediatric palliative care is family-centered and provides support for both your child and your entire family. Your palliative care team can handle communication and coordination so that it is one less thing you have to worry about. While assisting in decreasing caregiver stress, your team will also work with your family’s values and traditions to provide a unique form of care that works best for you.
Caring for a sick child can be difficult. You may not have the expert knowledge on how to deal with their diet problems or difficult symptoms from intense chemotherapy. Your palliative care team can be in your home to address these symptoms or problems as they arise so that your child is able to find relief sooner. You will also have access to 24/7 on-call support for any questions that may arise. Through palliative care, you will be provided with necessary prescriptions and medication in your home.
Navigating the Healthcare System
Your pediatric palliative care team can also help you navigate the complicated healthcare system and assist with any applications. Your insurance provider may provide coverage for pediatric palliative care, along with hospice care services. We will work with your insurance company to coordinate coverage for pediatric palliative care therapy and support to ensure you get the best possible coverage for your child and family.
Contact KidsCare of the Rockies
Palliative care strives to increase the quality of your child’s life, make your life easier, and provide the entire family with a strong support system. If you are considering pediatric palliative care, anytime is the right time to start. Reach out to Kids Care of the Rockies for more information on how palliative care can improve your child’s quality of life.