Pediatric hospice care is a specialized type of healthcare service for pediatric patients who are dealing with a life-limiting illness, along with their families, friends and caregivers.
- 1 Pediatric Hospice Care Team
- 2 Conditions Cared For
- 3 Pediatric Hospice Care FAQs
- 4 Beginning the Pediatric Hospice Care Process
- 5 Pediatric Hospice Pain Management
- 6 How to Decide on Pediatric Hospice Care
- 7 KidsCare of the Rockies Can Help
Pediatric Hospice Care Team
Pediatric hospice care is coordinated services comprised of a specialized team of compassionate hospice professionals who provide care for both the physical, emotional and spiritual symptoms associated with a life-limiting illness.
The team includes professionals such as: physicians, nursing staff, licensed clinical social workers, and spiritual guides. Symptom management is also provided to ensure a child’s comfort and security during the adversities of their illness. Making the choice for hospice care can be difficult, but will ultimately go far in improving the life of a patient and their loved ones.
Conditions Cared For
Pediatric hospice care is administered by a team of highly skilled, compassionate professionals who specialize in caring for a broad range of pediatric life-limiting illnesses. These may include:
- Autoimmune Disorders
- Congenital Anomalies
- Heart Disease
- Lung Disease
- Neurological Disease
- Renal Failure
- Additional Conditions
Speak to a hospice care professional for more information about additional types of life-limiting illnesses that are cared for by the KidsCare of the Rockies pediatric hospice staff.
Pediatric Hospice Care FAQs
Is Pediatric Hospice a Facility?
Specialized pediatric hospice care is not defined by a true location. While patients can receive pediatric hospice in a nursing or long-term care facility, patients may also receive care in the comfort of their own home. The goal of pediatric hospice is to promote the best quality of life possible for a patient and their family, no matter which setting they choose.
Who Provides Care for Pediatric Hospice Patients?
Hospice care is modeled to improve the all-embracing quality of life for a patient. Their quality of life can change with the appropriate, compassionate care delivered by specialized professionals from a clinical, nursing, counseling, spiritual, and volunteer staff. They work to address the holistic needs of the patient by providing assistance in medication management, medical supplies coordination, hospital care, and other services.
Are any Special Devices or Large Changes in my Home Necessary?
Your pediatric hospice coordinators work with you to address any special needs and coordinate obtaining any additional equipment required. In the beginning, little equipment is necessary, but the amount of equipment needed may change over time. KidsCare of the Rockies will provide assistance with equipment to ensure that changes in equipment, when necessary, is a comfortable and smooth transition.
Does Insurance Cover Pediatric Hospice Care?
Many insurance providers will offer coverage for pediatric hospice care. Medicare and Medicaid often provide national health benefits to assist in the insurance coverage of hospice care. Private health insurance providers are also able to cover pediatric hospice care. However, it is important for the family and loved ones of the patient to consult with their insurance provider to ensure that they are indeed covered. KidsCare can assist in this determination.
Beginning the Pediatric Hospice Care Process
Pediatric hospice care may begin once a physician or physician designee order is written. A KidsCare of the Rockies representative will usually begin by making a call within a 48 hour period after receiving the referral and approval from a physician to set up an appointment with the family. In situations that require urgent care, KidsCare of the Rockies can begin immediately in place of waiting for a referral to be processed. The patient and their family also have the option of choosing a “self referral”, indicating their request for an evaluation of their child before beginning pediatric hospice care services.
Pediatric Hospice Pain Management
When addressing the physical symptoms of a patient, the medical team dedicates a primary focus towards managing the patient’s pain and related symptoms.
In addition to pain management, pediatric hospice professionals work to enhance a patient’s quality of life by providing services that support mobility and self sufficiency. Additionally, the pediatric hospice philosophy extends beyond managing just physical pain. Patients under the therapeutic care of counselors, volunteers, and spiritual assistants benefit to an even higher degree of enhanced life quality and pain management.
How to Decide on Pediatric Hospice Care
Parents and loved ones have a strong influence on the patient’s or family’s decision to receive pediatric hospice care. Parents, families and caregivers will play a key role in ensuring quality care if the patient or parent chooses to commit to hospice care. The decision on pediatric hospice care can be a very difficult and sensitive process. It is important to address your questions, concerns and feelings to the pediatric hospice staff to determine when it is the right time to receive hospice services. Please feel encouraged to reach out to KidsCare of the Rockies with any questions. Our team will be glad to assist in the decision making process.
KidsCare of the Rockies Can Help
KidsCare of the Rockies specializes in providing compassionate, mission-driven hospice care to improve a patient and their loved ones’ overall quality of life. Contact a KidsCare of the Rockies hospice professional for more information on pediatric hospice care and how to determine when the time is right for hospice services.